6 months of adventures with glioblastoma.

When I started this blog just after surgery I wanted it to be a way of communicating with the people who wanted to know what was going on in my world. Since then it has become more than that for me.

It has become a way of journaling my thoughts as I move through this new reality. Thank you for coming along for the ride I really appreciate it. Having said that, if there are things that you just want to pass over and, simply skip to the update, no problem, that’s good with me too.

One of the many new things I’ve learned has been the power of meditation here is the piece you can skip if you want to go straight to the update.😄

Meditation

I am really new to meditation other than the short meditations that Krista and Josephine did during yoga. I also tried doing a few group meditations. One that I remember clearly was on our paddle boards on a very cold evening we were all freezing cold, and I was oblivious to the discomfort!

Anyway, meditation, what is it? And how and why do it anyway?

Those of you who follow me on Instagram will know that I’ve been doing a daily meditation using the Calm app so that I can learn more about it. A friend also recommended a podcast-On Purpose- by a guy called Jay Shetty which I have been listening to in order to learn more.

I use meditation in the following ways to help me sleep at night, to help me during an MRI, in general just to calm me down and relax into it without realizing it, I have tried all different forms of meditation and I like them all but for different purposes so there is breathwork, visualization and mantra meditation. If you have any resources are tips, please let me know since I am just learning and exploring.

6 Month Update

It’s been so nice not taking chemo every night my body does not feel much different quite honestly, my appetite is better my energy level is about the same with naps most days. This makes me think that my chemo is not too bad other than reducing my white blood count, which since being off the chemo has increased a little bit, we will see next week if I’m able to go back on the chemo and keep working on keeping this tumor from growing.

What can I now do?

  • walk moving my arms and legs in opposition as in an army march.
  • turn my t-shirt right way out
  • turn the bath tap off and on with my big toe.
  • hold a conversation for more than 10 mins.
  • clip into my cross-country ski bindings with relative ease
  • Hike 1000ft elevation gain no problem 😊
  • Can do transitions in yoga without falling over.
  • Can cross country ski 2 miles. One mile without falling over!!
Judd Pose near Lake Kacheles

My white blood count has been low for the last two weeks. On the last blood draw, it did not increase by enough, so I was not able to restart my chemo. Maybe next week? There’s not much I can do to help it so I have to just be patient. Seems like being patient is a lesson I’m really having to learn in this journey and that is totally fine.

What is still hard

  • Telling people my story to people who don’t know about it. I get emotional.
  • Balance with my eyes closed
  • Stand on my left leg for more than 10 seconds without over balancing. This means that most of the standing balance yoga poses I am still working on.
  • Downhill Skiing.

These are the biggies. I know there are more, but I am trying to stay positive!

One of my big take away from Jay Shetty’s podcast is that he recommends starting your morning by NOT looking at the notifications, news and negativity on your phone but rather by creating habits around- Thankfulness, inspiration, meditation and exercise. This I can do!!!!

On Rattlesnake ledge, President’s Day.

11 thoughts on “6 months of adventures with glioblastoma.

    1. There are many ideas here that would help many of us. I am trying out your ideas about changing the way we look at things and building positivity – thank you for sharing xx

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  1. You’re so flipping inspiring I can hardly stand it! I still have the podcast to listen to. Going to do that. Thanks for being a guiding light my friend ❤️

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  2. Dawn, I don’t know you well but I liked you from the first time I met you. There is nothing more exciting than meeting somebody that is happy and spontaneous which you are in abundance. I am sorry that you have to go on this journey but on a positive note, you have managed to inspire others and remain your spontaneous generous self. Thank you for that.

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